Internasjonalt press

Det norske MS-forbundet sendte I torsdags følgende brev til European MS-federation og International MS-federation.

Nå er informasjonen om vår norske HST kamp for alvor kommunisert uten for Norge.

::::::::::::::::::::::::::::::::::::::::::::::::

Dear all,

Just to let you know that our Board has awarded Hanna Vesterager the annual Norwegian MS Prize. http://www.ms.no/nyheter/hanna-faar-ms-prisen. Hanna has struggled for many years to obtain autologous stem cell transplantation (HSCT) for her MS. She was allowed HSCT in 2011 in Stockholm, at that time unable to work, now back in business full time. Please see a translation of the Board?s reasoning below.

HSCT is a hot topic in Norway right now. Many Norwegians travel abroad for HSCT. Our competence center in Bergen

is trying to establish a research based treatment option for 25 persons a year.

Hanna has given individuals, the academic community and the MS- association in Norway knowledge about the international experience with this treatment. Through her open struggle for autologous stem cell transplant, she has personalized all patients who struggle to get this type of treatment, while there is little knowledge in Norway about this. Hanna applied to have her stem cell treatment paid by the Norwegian health authorities. This was rejected and Hanna paid her own treatment. After she had completed her stem cell transplant, she sued the Norwegian state to be reimbursed for her treatment costs. She won in the first court, but the Court of Appeal and the Supreme Court declined. The MS- association thanks Hanna for her tireless struggle for the Norwegian MS-patients to get access to autologous stem cell transplant. "

Kind regards

Olav Førde

Information manager

MS Society of Norway

22 47 79 94 / 414 612 06

E-post: olav@ms.no

www.ms.no

Ingen kommentarer

Skriv en ny kommentar

hannastamceller

hannastamceller

55, Oslo

"My luck hasn`t run out yet." - Keith Richards. Jeg er fysioterapeut og arbeidsmiljørådgiver.Jobber ved Arbeidstilsynet Oslo som seniorinspektør. Jeg jobbet med omfattende lobbyarbeid i over 3 år for å få til en autolog stamcelle transplantasjon for min ms. Det lykkes meg og jeg er nå ikke syk lengre, men kun lettere funksjonshemmet etter tidligere MS.

Kategorier

Arkiv

hits